That is the name of the book being authored by fellow Doula and Mentor, Cindy J. Kaufman and me. The book includes interviews of 12 additional End-of-Life Doulas, Death Doulas, Death Midwives, Death Companions, Death Caregivers and the like, We sent requests for participants be considered and interviewed for inclusion. We are so excited and thankful for the souls that showed up. We were able to talk with and learn from a diverse group from across the country, ranging from 25 to 81 years old, There is a lot to complete to tell the stories of this vocation, but we are happy to shine this light.
"PREPARE for your care" is an online program that provides step by step plans for your care in the form of Advance Directives, if you are not able to speak for yourself. AD provides your family, friends and medical professionals with the information you would want them to know in the instance of any chronic or terminal illness care.
There are two very important Advance Directives that can be and should be completed in advance of, by anyone 18 years old and older. The first is the Living Well. When completed, witnessed and signed, this form will direct your medical care team of your wish for care should you be unable to competently speak for yourself and be facing chronic/terminal illness. A Living Will informs your doctor what care you want as well as the care you will not want at end of life. There are a number of things to address in a Living Well. For instance, if you will like all life supporting efforts or will rather have "comfort care". You can designate if you will prefer to die at home or in a care facility. Perhaps you want to chose whom or what is at your bedside or not there, at your final weeks, days or moments. All these circumstances can be address in your Living Well.
The second form is the Health Care Proxy. This document allows you to stipulate a person/agent to legally advocate for you if you are unable to speak for your own medical decisions. This person, the proxy, represents your values and concerns. Being appointed and documented, this person doesn't have to wait until you are terminal. They may act on your behalf when you are unconscious and temporarily ill, yet your proxy will also be aware of your Living Will and work on your behalf to unsure that your wishes are carried out if a situation is life ending. This person also has access to your medical records, avoiding the constraints of HIPPA. In picking your proxy, it is best to chose a person or persons you trust, whom is willing and able to speak up for you. So have a conversation with at least 2 people and list them in order of authority in case your first selection is unable to fulfill the duties.
Below are several additional resources to completed these documents. Some you are able to complete online then print. Others will needed to be downloaded, printed and completed by hand. Follow these steps...
Lastly, consider the utmost importance of these completed documents. If you are unable to advocate for yourself during a medical emergency or end of life, there are no guarantees that medical professionals will act in your best interest and may even consider your lack of advanced planning as indifference to the care you receive.